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Up-to-the-minute Lyme Disease
News from across the country
Chronic Lyme Disease is a Frequent Cause of Fibromyalgia and CFS
Books about Lyme Disease
New
Ideas About the Cause, Spread and Therapy of Lyme Disease
ClinicalTrials.gov - Information on Clinical Trials and Human Research
Studies: Browse: Tick-Borne Diseases
What Psychiatrists Should Know about Lyme Disease
Conflicts -
why we can't get diagnosed and treated
Summary of Lyme
Coinfections
GAO
Investigation - partial history of the politics of lyme
Lyme Legislation
State by State in the U.S.
LymeBlog - News and personal stories of people with Lyme disease
Lyme Disease Is A Ticking Epidemic
http://jemsekspecialty.com/ncmb-remarks.php
The Chronic Lyme Debate
Infectious Disease News
When to Suspect Lyme
Lyme Times past
issues
Articles
Published in the Lyme Alliance Newsletter
By Robert C Bransfield, MD
5% of Canadians report 'medically unexplained' conditions
But You Don't Look Sick? : The Spoon Theory
Lyme Disease
Association, Inc. - Brochures
Canada LDF Lyme
Disease Brochure
ILADS Psychiatrist
Brochure
Epidemiologic
Perspectives & Innovations Generalizability in two clinical trials of
Lyme disease
Dr. Y's Family Care Clinic
Thousands of categorized links on lyme disease
Lyme Disease: Trouble in Paradise - Yankee Magazine
New Evidence
on Lyme Disease Supports Need for Extended Treatment Therapy
Lyme Disease Hearings and
Transcripts
The
Complexities of Lyme Disease
(A Microbiology Tutorial)
by, Thomas M. Grier
Lyme disease - What we
know, what we don't know Thomas Grier
LYME DISEASE A comprehensive guide to Diagnosis and Treatment
CHRONIC LYME
DISEASE
Summary of Letters of Testimony from Patients written to the NY State
Assembly on Long Term Antibiotic Therapy for Lyme Disease
Conflicts of
Interest in Lyme disease - laboratory testing, vaccination and Treatment
Guidelines
Columbia Magazine
Borrelia in cells
Potential for Lyme Disease Spreading at an Alarming Rate
Lyme Disease, Comorbid Tick-Borne Diseases, and Neuropsychiatric Disorders
LYME DISEASE VICTORIES!
Clinical Advisor
Accepted and paid insurance claims - Lyme Cases 2001--- only
includes a few major health insurers; and only claims that were submitted
electronically
Severity of Lyme disease with persistent symptoms. Insights from a
double-blind placebo-controlled clinical trial - Source: Minerva Medica, Oct
2008
Testing considerations
Tick Borne Disease Radio |
Lyme Links
Following are links to resources for those who are suffering from or who wish to learn more about Lyme Disease.
For other resources check the box in the upper left hand corner of this
page.
Websites
ILADS - International Lyme And
Associated Diseases Society
A non-profit organization of LLMD's. Informational website for
physicians and patients. This site represents a wealth of knowledge
for both the physician and patient..
Lyme Disease Practice and
Research
Lots of great information including a free e-book about lyme. Very
respected authority on lyme disease.
Lyme Disease Association,
Inc. - LDA
Dedicated to Lyme disease education, prevention, and raising research
dollars. An informational website.
Canadian Lyme Disease Foundation
Non-profit, informational website about Lyme disease in Canada. Lots
of information that is helpful no matter where you live.
Lyme Disease Foundation
Non-profit, educational foundation dedicated to finding solutions for
tick-borne disorders. They have archives of a journal that was
published relating to tick borne disorders along with information on the
vaccine that was withdrawn, personal accounts of Lyme, legislative
information and much more.
Columbia University Research
Established in 1994, the Lyme Disease
Research Program of the New York State Psychiatric Institute focuses on the
neuropsychiatric aspects of Chronic Lyme Disease in adults and children.
California Lyme Disease
Association (CALDA)
Non profit organization whose purpose is to educate the public about Lyme
Disease, offer resources for those suffering for lyme and provide a forum
for health care professionals who treat lyme patients. They also work
to encourage Lyme Disease research. They publish an informative
journal called Lyme Times.
CALDA - History of Lyme Legislation
Chronic Lyme Disease
ChronicLymeDisease.com was founded by several Lyme Disease sufferers who
wish to educate the world about the chronic form of Lyme infection.
Health Centers of America Lyme Disease Table of Contents
A treating clinic in Missouri, they have basic lyme information.
Lyme Disease Symptoms, Treatment,
Prevention, Advocacy from Lymeinfo.net
Has
been serving the online Lyme disease community since 1997.
Comprehensive information for beginners and experts. The website
provides details about Lyme disease symptoms, diagnosis, treatment, and
prevention. Advocacy info and peer-reviewed medical literature are also
available. You will find articles as well as an extensive directory of
information about Lyme disease and other tick-borne infections.
The Human Side of Lyme
A doctor who suffered from Lyme herself tells her story and educates the
public about political issues and more.
LYME ARTICLES by James L. Schaller, MD
Lots of information about lyme and medical
issues that are part of lyme. Information about ADD, ADHD
LymeBlog - Users Journal
Create a journal and read other lyme journals.
Lyme Disease Action,
the UK based Lyme charity
Lyme Disease Action accepts and adopts the medical guidelines issued by The
International Lyme and Associated Diseases Society (ILADS). The
website contains literature on Lyme Disease and associated tick-borne
diseases. LDA has a policy of making it's publications available to all, and
free of charge electronically. Transcripts from their conferences are also
available on the website.
Lyme Neurological disorders Support Group
(New York)
An informational and interactive web site for individuals with neurological
disorders due to Lyme disease (Lyme neuroborreliosis).
The National Lyme Disease Memorial
Park Project_Index
The Memorial website was created for and will be maintained as a virtual
educational hub for those who have personally dealt with or who now question
the seriousness of chronic Lyme and tickborne associated fatalities. In
particular, it will list names and some condensed obituaries of those who
have passed away, so that we may not forget them or the high toll of these
diseases.
Lyme Induced Autism
A website devoted to issues of autism that has been induced by Lyme Disease
Lyme Disease Audio Network
They host a Lyme Disease Chat every Saturday beginning at 8 pm EST.
You can find audio interviews with authors, professionals, patients etc.
LymeInfo : Lyme
Disease Info
The LymeInfo email list has been created to supplement the website
Robynns_Lyme_List
Provides current and/or relevant Lyme disease information almost every day
to members. This list is great for people who do not have a lot of time, yet
still desire to stay on top of the latest Lyme disease information.
BetterHealthGuy.com
Website of a lyme disease patient. His story, lyme disease conference notes,
information on treatments etc..
Lyme
Disease | CFS | Chronic Fatigue | Holtorf Medical Group
Lymesite.com
The website of a family who suffer with neurological lyme disease.
Covers various topics of interest to lyme patients who are trying to learn
about lyme disease.
Morgellons Research
Foundation
This non-profit foundation is dedicated to finding the cause of an emerging
infectious disease, which mimics scabies and lice. Thought to be
associated with Lyme Disease.
Turn the Corner
Foundation
Founded by a lyme patient, Turn the Corner is dedicated to the support of
research, education, awareness and innovative treatments for Lyme disease
and other tick-borne diseases.
Wilder Network
Lots of great information. Non-profit organization. Founded by a
lyme patient. Information on tests, doctors and a lot more.
http://www.actionlyme.org/
A controversial, somewhat political site but well worth viewing.
Lyme Disease Symptoms, Treatment & Lyme
Disease Info
LymeMD
Blog of a Lyme Treating MD
Dr. Alan MacDonald's research
website
Dr.
MacDonald's Paper on transfection
Dr. Jones Kids
CDC Lyme Disease
The medical controversy in Lyme Disease has to do with diagnosis and
treatment of Lyme disease and especially Chronic Lyme Disease. The CDC
takes a much more conservative approach in diagnosis and treatment by
following the Infectious Disease Society of America's guidelines (IDSA).
The problem is that the IDSA admit to having little or no objective evidence
for their recommendations. The IDSA guidelines are currently being
investigated by the Connecticut Attorney General's office for the
exclusionary way that they developed their lyme disease guidelines.
While I feel that the CDC is not an accurate website for lyme disease
information, I am including it so that you
will have a better picture of both sides of the argument.
Discussion Groups
LymeNet Flash Support
Forum
A large support group with forums for medical, finding a doctor, activism
and general support.
Lyme Aid
Buhner
Lyme Aid Buhner is a support group designed for discussing the alternative
treatment ideas Stephen Buhner talks about in his book Healing Lyme: Natural
Healing and Prevention of Lyme Borreliosis and Its Coinfections.
Lyme
Community Forums: Viewing list of forums
Lyme Community Forums was founded in November of 2006 by a fellow Lyme
Disease sufferer. This website is your one-stop resource for making friends,
giving and receiving support, and discovering treatment resources.
Lyme
Disease: HealingWell.com Forum
A discussion forum for lyme. You can also find other disease
discussion forums in another section of the website. In addition,
articles, news, information, video webcasts, chat rooms, email, books,
resource directory and more.
Canadian Lyme Disease Foundation
Bulletin Board
Lyme Information and Discussion
EuroLyme - Lyme
Disease Support Group
EuroLyme is a UK based European site where patients and professionals can
find friendly support and reliable information about Lyme disease
Borreliosis and other Tick-borne Infections.
Lyme Disease - BrainTalk Communities
General Lyme Disease discussion.
Teens and Young
Adults dealing with Lyme Disease and Other Illnesses Support Group
Online support group for young adults and teens with lyme disease and/or
associated diseases
Lyme Warriors
This is a list for young people suffering from Lyme disease. Anyone who
wants to communicate about the concerns involved with this disease, and it's
specific effects on young people, are invited to join Lyme Warriors.
Lyme Disease Support Group
MDJunction.com. Looks like a fairly new group. Promising.
It is moderated.
The Netherlands Lyme discussion Group (LymeNet)
Discussion group and website for the Netherlands.
Other Links of Interest:
Congenital Lyme
Lyme Disease in Canada,
Karen Forschner story
Congenital Lyme Disease,
Lyme and Pregnancy
1) Yale's Robert Schoen refuses
to treat me for Lyme, pregnant, having given Lyme to my first two kids
Yale Dept of Pathology - Bb in a newborn despite oral Penicillin during
pregnancy
Diagnosis
Diagnostic Hints and Treatment Guidelines for Lyme and other Tick Borne
illnesses
ILADS’ Position Paper on the
CDC’s Statement Regarding Lyme Diagnosis
IGeneX, Inc.
They specialize in tick borne illnesses.
Fry Laboratories
Central Florida Research, Inc
Performs Lyme Testing using the Flow Cytometry method as well as the Western
Blot methods of IgG and IgM.
DiaSorin
New Lab.
Autoimmune
Testing | October 2007 | Clinical Lab Products
Lyme Induced Autism - A complete Guide to Testing
When to Suspect Lyme
Prior to proper diagnosis, patients habitually
report that they were assigned the following diagnoses most often: Chronic
Fatigue Syndrome, Multiple Sclerosis, Fibromyalgia, Lupus, Candidiasis,
Chronic mononucleosis, Hypoglycemia, and Stress-related illness. If these
appear in a differential diagnosis, then LD should be considered.
Dr. S. Harris presentation 2008
Lots of great information such as complicating factors in lyme treatment,
statistics for specific bands on the Western Blot, diagnosis, symptoms for
co-infections and more..
C. Brenner:
Explanation of the Lyme Disease Western Blot
Explaining
Borreliosis (Lyme) Western Blot Tests - LymeNet Flash
Video explanation of lyme
testing
The Complexities of Lyme Disease,
Tom Grier
Potentially misleading Western blot results in Lyme disease diagnosis |
British Journal of Biomedical Science
It was noted recently that serum from a patient with confirmed parvovirus
B19 infection crossreacted with the in-house Borrelia burgdorferi IgG
Western blot. This could lead to the wrong interpretation of Western blot
results. This study aims to discover if other viral infections produce
similar results with the B. burgdorferi IgG Western blot.
LymeNet seeking a doctor forum
Lyme Blogs
LymeBlog
Pamela Weintraub, author of Cure Unknown - Inside the Lyme Epidemic" has a
blog on the Psychology Today site with excerpts from her book.
Part 1
Part 1 - Into the Woods
Part 2 Paradise lost
Part 3 Through the Looking Glass
Publications
lymetimes.org
Lyme Times publishes information on behalf of the Lyme community, including
the Lyme Disease Association and its affiliates.
Public Health Alert
Educating the public and medical professionals on health issues.
Publishes a monthly newspaper with informative articles and interviews.
Watch Video on-line - Educational
Lyme Disease Association - Lyme & Other Tick-borne Diseases: Current
Strategies & A Map to the Future
Click on each individual presenter to watch their presentation.
Paul Duray, MD (ex-vivo modeling of Bb)
Paul Fawcett, PhD (Testing)
Dr. Klinghardt cell
phones, lyme, mold, autism
Amy Tan LymeAid 4 Kids Presentation
Carolyn Barley Britton, MD (Abnormal white matter on brain MRI)
Mitch Hoggard, RPh (Antimicrobial Agents)
Martin Fried, MD (Coinfections Associated with Abdominal Pain)
Borrelia and Dementia
LYME_DISEASE INTERVIEW WITH DR. STEVEN HARRIS AND DR. LYNDA WILLIAMS
LYME DISEASE: EPIDEMIC? Dr. Ray Stricker's interview on NPR's The Health Show
- MP3
The
Naturopathic Perspective featuring Dr Nelson
A Naturopathic Doctor in the NW who treats primarily lyme disease discusses
the basics of lyme disease. She herself contracted lyme disease while
in school to become an ND.
In Short Order
Radio Interview with Scott Forsgren - the Better Health Guy
http://www.betterhealthguy.com/
Dr.
Ritchie Shoemaker, Lyme disease and Co-infections
YouTube - Lyme Disease and Biotoxins
Very short video with Dr. Burrascano. and biotoxins
YouTube - VVH-TV News
-- Lyme Disease: Medical Nightmare (Part 1)
Very good interview in the second half with Dr. Burrascano about the
politics of lyme disease and his own persecution after testifying before
congress about the conflicts of interest in Lyme Disease. Also, info
about the prevalence of lyme disease on Long Island. Also, interview with a
person who contracted lyme disease while visiting the Hamptoms.
YouTube - VVH-TV News
-- Lyme Disease: Medical Nightmare (Part 2)
Interviews with various people who are active in lyme disease education and
activisim. Time for lyme interview.
YouTube - Alzheimer's
Disease Caused by Infection
Website that goes with this:
Alzheimer's Disease and
Neuroborreliosis - Evidence from Molecular, Microbiology and
Immunohistchemisrty See film below
Lay Institute
- biological warfare: experiements on the American people with Garth
Nicholsen
San Francisco Lyme Disease Talk Show
Interview with several lyme disease patients.
Dr Robert DeJonge - Lyme disease - World Health Net TV
Activisim - IDSA Investigation
The IDSA (Infectious Disease Society of America), have issued
guidelines for lyme disease that Insurance Companies often use to deny
chronic lyme patients medical treatment.
The IDSA denies that chronic lyme disease even exists despite numerous
studies that show persistence of the infection.
Serious conflicts of interest have been discovered by an investigation into
the writers of the guidelines. This has resulted in the IDSA agreeing
to review the guidelines in order to avoid legal action. The process
of choosing new panel members will be overseen by a medical ethicist.
Attorney
General: Attorney General’s Investigation Reveals Flawed Lyme Disease
Guideline Process, IDSA Agrees To Reassess Guidelines, Install Independent
Arbiter
Frank Wolf, member of congress, writes to the inspector
general of the U.S. Dept. of Health and Human services, calling for an
investigation.
http://wolf.house.gov/uploads/Levinson_Letter_9-4-08.pdf
Video of
presentations at the IDSA hearing
Activisim - Watch Video on-line
Lyme Disease
Association Insights Into the Crisis, Key Players and the Future:
A panel discussion wiith Dr. Burrascano, Pam Weintraub and an attorney.
Also, personal stories and history of lyme disease.
Lyme Disease
various videos.
YouTube - The Hidden
Epidemic
YouTube - Lyme
Disease
Lyme
disease , A cure to late for many
YouTube
- Marie McQuhae Lyme Disease - savemarie@yahoo.com
ABC
News - Brooke Landau story
Movies About Lyme
MySpaceTV: Under Our Skin U.S. movie trailer
Lyme Disease - What is going
on? UK Documentary Movie Trailer
YouTube - Under
Our Skin - Excerpt 2 - The Perfect Storm
Sue Vogan's "In Short Order" radio interview with the film makers of
the UK Documentary
Scroll down until you get to the 10th of April.
Maps
Methods Used for Creating a National Lyme
Disease Risk Map
CDC Lyme Disease
Established and reported distribution of the Lyme disease vectors Ixodes
scapularisI. dammini and Ixodes pacificus, by county, United States,
1907-1996
http://www.textbookofbacteriology.net/cdc6.gif
CDC Lyme by County slide
U.S.
Regional Map of Lyme disease, Canine Ehrlichiosis, Heartworm, Anaplasma
Canine Lyme Disease Links
Tick Links
TICK-L list for veterinary tick borne illness. FAQ's and links to
other websites.
Tick
Disease
Canine Tick diseases.
Ticks, Dogs and Disease: Protecting
Your Dog from Lyme Disease and Other Dog Tick Diseases
Cornell
University Consultant
A computerized diagnostic support system for veterinary medicine developed
at Cornell.
All About Lyme Disease In Your
Dog
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